Thursday, March 29, 2012

Epilepsy

Mark is 15 and just had another EEG done. He had multiple "blips" during the test. He did not outgrow it and at this point most likely won't. This makes me sad. No parent likes to have their child have limits put on them. He will never join the military, a pilot, or police officer, firefighter (when he was young he wanted to be a fire TRUCK) or a few other jobs that little boys want to grow up and be. He will have to serve an LDS mission where he can receive his medicine, most likely the USA. The kind of seizures he has is genetic. (I have a first cousin with it) I need to know more about this, % of how it may be past onto his future children. Dale and I are both disappointed but we have been through this before.

Mark had just turned 2 when he had his first tonic-clonic (grand-mal, is the old term). He was buckled in his car seat behind me when Glenn said something like "Mom, something is wrong with Mark." I looked back and it was obvious he was having a seizure. I went right into help him mode. I knew first aid for it (Thank you girls camp). I was not panicked but my adrenalin was rushing. I was ok through the first one. I lost my composure during the second one in the hospital while receiving a priesthood blessing within an hour of the fist one. Those first two were traumatic for me. I've done ok since then. We were humbled at Children's' Hospital in DC where we meet many families dealing with much more than we ever will.

Mark is cool with it all. (unlike his wimpy mom) He felt he knew (or I like to think was prepared) ahead of time that he hadn't out grown it. "It's all good". I hope people know first aid.

http://epilepsyfoundation.org/livingwithepilepsy/firstresponders/index.cfm

2 comments:

Natalie Smith said...

Sheryl,
Rylee had a suizure (the breaking the fever kind) as a young toddler and it was so traumatic for me. Reading this was bringing it all back! Bless your heart! You are not a wimpy.
PS- U.S. missions have there perks ;)

Koko said...

Wow - I'm sorry about this but I'm proud of Mark for facing it head on and dealing with it. It will work out to be something positive in his life I bet. And I agree - you are NOT wimpy! And good for you to know how to handle the emergency!!